Dear Fedi, advice and suggestions please! My father is losing his eyesight due to age-related macular degeneration; he has some peripheral and distance vision left, but almost no near vision, and is for example unable to read either screens or print. Might anyone have any ideas for making his life easier, either with assistive technologies (which is the best screen reader?) or general tips for navigating daily life?
Boosts for reach welcome!
❤️
#AskFedi

en

Replying to @⁨mothninja@beige.party⁩

@mothninja This is a huge topic, but as a blind accessibility specialist, I can be of help.
Recommendations in no particular order.
1. First of all, blindness is not an emprisonment sentence. His life will not be easy, — I'm not part of those people promoting blind pride, — but if helped correctly, he will continue living a full, prosperous life. Nothing is ending, he is not doomed. That can be obvious or not obvious, but I really want you and him to understand it firmly.
2. Start now. While he still has eyesight, let him start learning his screen reader. TODAY! (Sorry for yelling, but it's really important and I cannot put text in italics or bold here). Why? Because if now he gets lost, if something is not accessible, he can still look at it and find or ask for a solution.
3. The best screen reader. It's a huge holy war, like Windows vs. Mac vs. Linux, iOS vs. Android, PlayStation vs. XBox, etc., etc. but no matter what, Windows is the easiest and by far the most accessible platform out there. I don't know about your attitude towards that open-source fever of today, but if you really want your father to thrive, it's Windows on PC and iOS on the phone. I recommend JAWS for Windows, the screen reader I've been using for 28 years now. It's kinda expensive, but might be gotten by means of the country aids. However, I don't know his background. If he doesn't do anything super sophisticated, maybe it's worth to begin with NVDA, a free and open-source one. The main particularity of NVDA though is that it basically is a lego: you have quite a simplistic screen reader, but there are many addons (plugins) out there that solve many tasks. JAWS is far more powerful out of the box. But expensive. But powerful out of the box.
4. Accessibility. Not everything is accessible in our world, unfortunately. Tell him that, if something doesn't read, if he can't navigate past this link, the chances are very high it's not him, it's app or website developers who made it inaccessible to the blind.
5. Ask for more, I'm glad to help!

Replying to an earlier post

@mothninja Well unless you want to upend his entirely life and make him switch to Android when he's already comfortable with Apple and has not one, but two devices, no. I wouldn't recommend that.
I can use both platforms and daily drive an iPhone. Android is pretty much there in terms of parity but if you're losing your sight, the last thing you want to do is A, learn a new phone/tablet, and B, learn a new screen-reader on top of all that. it's a bit much.

Replying to an earlier post

@mothninja I am also vision impaired, and I’m disabled in the way that I don’t walk as well. So one tip I have is getting a walker with a seat. I like to put stuff in the seat to carry with me, but I use the walker instead of a blind stick. As we get older, we need a little bit more help walking, and I found that this was my favorite accessibility device.

I saw you’re using iPad and iPhone, which is in my opinion much better than android. I am currently on an iPad and I have some vision so I find talk to text works better for me. But I think that’s because I have some vision left. I also have an android and talk back on the android has not been easy for me.

Replying to an earlier post

@mothninja I am now in a wheelchair (unrelated) so now when I bump into things and people I do it with gusto! 😆

I also was hesitant but I found as a woman I felt safer being in public. I had to walk with a regular cane for mobility issues and I would look down. I had a few instances with men waving their hands in my face or waving them around and I found the walker put some raming distance between us.

My mom just broke her foot and is using a walker with a seat and she said she thinks she wants to keep using it. It is too handy and safe to give up. Once you go walker you don’t go back? 🤭

Replying to an earlier post

@mothninja perhaps the eyesight of your father is already worse than my mother's but she can still read on her Ipad using some settings that magnify all the letters. Also she uses something like this for her books and old diaries: vanlentsystems.com/slechtziend

vanlentsystems.com/slechtziend/beeldschermloep/met-spraak/i-see-speech/

Replying to an earlier post

Replying to an earlier post

@mothninja My late father had severe macular degeneration. He was a WWII vet; the VA provided him with a reader similar to the one that someone posted earlier. He used the reader daily for the morning paper. He also had a large lighted magnifying glass with a handle, which he sometimes used at home and often took to restaurants. Didn’t have the patience for audiobooks, which was too bad. Hope your dad finds ways to adapt.

Replying to an earlier post

@mothninja my mother in law had severe macula degeneration. We lost her last year when she was almost 102 years old. Things that helped: she used a Walker. My husband stickered it with red/white striped tape so it would resemble a walking stick for the blind. She couldn't recognise people anymore and people didn't realise that she was practically blind. She would always tell people "I cannot recognise you, please tell me your name". We had a button made with that text.

Replying to an earlier post

@mothninja Not sure which country your Dad is in, but many countries have statutory low-vision services who can help with everything from daily living to tech, or link you up with local charities and peer support.

Some of the best technologies are the simplest.

AbilityNet a UK charity have a "built in assistive options howto" at mcmw.abilitynet.org.uk/

Apple has apple.com/uk/accessibility/fea with deeper dives.

I'd say start small, build confidence, pick quick wins at 1st.

Replying to an earlier post

@mothninja I helped my late father in law with similar issues. On Windows he found Magnifier very useful for reading. You can also globally increase the UI scale (Settings -> Display -> Scale), or the system font size (Settings -> Accessibility -> Text Size), to make reading easier.

The inbuilt screen reader works ok but can be a kinda rough adjustment. JAWS can be better, but comes with a bit of a learning curve.

Replying to an earlier post

@mothninja

I spent some weeks earlier this year almost blind after eye surgery in my working eye.
Now I have a screen reader and voice to text configured properly.
As he still has some distance vision I thought my adaptations might help for now?
My eye with refractive amblyopia is long sighted although even that is very fuzzy. As a fix, a friend colour coded all my meds with a large print sheet in the same colours so I knew which to take when.
I already use a walking stick so used that to find bumps and steps outside.
And I already use a couple of sites that offer free audiobooks for anyone with a relevant disability.

If he has to get his own meals then you can in the UK buy a gadget to read labels or get an app.

rnib.org.uk/

Replying to an earlier post

@mothninja

My wife uses:

Fusion screenreader: speech to text, and magnification, for her computer.

A white cane (with training from Guide Dogs). When I'm guiding her I often hold her white cane so people realise she's vision impaired (they tend to be more helpful if they know).

Here, Vision Australia (used to be the Royal Victorian Institute for the Blind) has a library of ebooks for free (she listens to them on her iPad).

Replying to an earlier post

@mothninja My Dad has macular degeneration. He made his life easier by buying a brand new Chevy Impala. 🙄

Sorry, I know that's not helpful, but it is true. Maybe what I'm saying is that old boomers going blind have a tendency to justify whatever they want by leveraging their diseases in anti-social ways, and maybe be on the lookout for that.

I'm sure your Dad isn't like that though. Just mine. 😬

Replying to an earlier post

@mothninja My dad lost his eyesight due to glaucoma. He became depressed, and suffered from dementia (this was back in the 1990s). What helped him was music; he used to be a musician, so listening to music made him happy, even if he wasn't making it himself. Also, we didn't have it then, but if your dad's hearing is still functioning, try audio books, or audio anything. Also some health and veteran's organizations offer workshops and retreats to help people deal with vision loss.

Replying to an earlier post

@mothninja www.visionaware.org www.hadleyhelps.org also, if you are in the US, search for independent living older blind and the name of your state. Every state has a program that helps older people to maintain their independence following vision loss. I am the vision services manager for Ohio if you happen to be here, but I’d be happy to do my best to direct you to resources in your state as well.

Replying to an earlier post

@mothninja

VoiceOver (Apple) and TalkBack (Android)

full screen readers already on any iPhone/iPad/Mac or Android device, no purchase needed. Also worth knowing: iOS/macOS have separate Zoom and Magnifier features that work alongside VoiceOver rather than instead of it, which suits someone with retained peripheral vision better than a pure audio-only screen reader.

Seeing AI (Microsoft, free, iOS) points a phone camera at printed text, documents, or products and reads them aloud; also does currency and basic scene description. Genuinely well-regarded and free is a big deal here.

Be My Eyes (free) : connects to sighted volunteers or an AI assistant via video call for anything the automated tools can't handle, reading a label, checking a stove dial, sorting mail.